{"id":2190,"date":"2025-05-31T20:23:21","date_gmt":"2025-05-31T18:23:21","guid":{"rendered":"https:\/\/path-for-young.unicancer.fr\/?page_id=2190"},"modified":"2026-02-26T17:02:48","modified_gmt":"2026-02-26T16:02:48","slug":"engagement-des-patients-et-representation","status":"publish","type":"page","link":"https:\/\/path-for-young.unicancer.fr\/fr\/engagement-des-patients-et-representation\/","title":{"rendered":"Engagement patient  &amp; representation"},"content":{"rendered":"\n<div class=\"wp-block-uagb-container uagb-block-328bf07b alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\"><div class=\"plmb plmb-text mce-content clearfix format-intro\">\r\n\t<h1>Engagement des patients<br \/>\net repr\u00e9sentation<\/h1>\n<\/div>\r\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container hidden uagb-block-889e98c0 alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\"><div class=\"plmb plmb-video\">\r\n\t\t<div class=\"video-inner\">\r\n\t\t<div class=\"video-container\">\r\n\t\t\t<a href=\"http:\/\/#\">http:\/\/#<\/a>\t\t<\/div>\r\n\t\t\t\t<div class=\"video-cover\">\r\n\t\t\t<div class=\"cover-content mce-content\">\r\n\t\t\t\t\t\t\t<h2>\r\n\t\t\t\t\tRegarder l\u2019interview<br \/>\r\nd\u2019Adrienne Morgan\t\t\t\t<\/h2>\r\n\t\t\t\t\t\t\t\t<div class=\"cover-content-subtitle\">\r\n\t\t\t\t\tScientifique &amp; Patiente partenaire <br \/>\r\nchez Independent Cancer Patients' Voice\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<div class=\"cover-bg\" style=\"background-image:url(https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/06\/AdobeStock_169442560-1024x683.jpeg)\"><\/div>\r\n\t\t\t\t\t\t\t<div class=\"cover-overlay\"><\/div>\r\n\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\t\t<\/div>\r\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-5a7f4ece alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-25de2e89\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2><span style=\"color: #05206d\">Mettre l\u2019\u00e9quit\u00e9<\/span><br \/>\n<span style=\"color: #05206d\">et la co-cr\u00e9ation<\/span><br \/>\n<span style=\"color: #05206d\">au c\u0153ur de l\u2019essai<\/span><\/h2>\n<ul>\n<li><span data-teams=\"true\">Cette bo\u00eete \u00e0 outils fournit aux \u00e9quipes de recherche, cliniques et organisationnelles des outils pratiques et \u00e9volutifs pour faire progresser la diversit\u00e9, l\u2019\u00e9quit\u00e9 et l\u2019inclusion (DEI). Des mod\u00e8les, checklists et guides de communication pr\u00eats \u00e0 l\u2019emploi aident \u00e0 identifier et lever les obstacles rencontr\u00e9s par les populations sous-repr\u00e9sent\u00e9es, afin de garantir un acc\u00e8s \u00e9quitable aux \u00e9tudes, aux soins et aux opportunit\u00e9s. En int\u00e9grant les bonnes pratiques DEI dans les processus du quotidien et la strat\u00e9gie de long terme, la bo\u00eete \u00e0 outils favorise des environnements o\u00f9 chacun se sent respect\u00e9, repr\u00e9sent\u00e9 et accompagn\u00e9. Bien que con\u00e7ue initialement pour le programme Path-for-young, sa structure est facilement adaptable comme mod\u00e8le pour d\u2019autres projets.<\/span><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<\/div>\r\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-c232a6e6\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-54749498\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h4><span style=\"color: #006160\">Bo\u00eete \u00e0 outils pour la diversit\u00e9, l\u2019\u00e9quit\u00e9 et l\u2019inclusion<\/span><\/h4>\n<ul class=\"green-list\">\n<li>Fournir des recommandations pour la co-conception avec les parties prenantes afin de faciliter la co-participation. Optima-young b\u00e9n\u00e9ficie d\u2019un fort engagement.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\" target=\"_blank\" rel=\"noopener\">Acc\u00e9der \u00e0 WeShare<\/a><\/li>\n<li>Recommandations p\u00e9dagogiques aux chercheurs sur la participation inclusive.<br \/>\nFournir des recommandations p\u00e9dagogiques aux chercheurs sur la <strong>participation inclusive<\/strong>. Dans Optima-young, nous suivrons ces recommandations, notamment en mettant en place un design d\u2019essai pragmatique concernant les crit\u00e8res d\u2019inclusion\/exclusion. Nous veillons \u00e0 la <strong>compr\u00e9hension<\/strong> <strong>et \u00e0 l\u2019acceptabilit\u00e9<\/strong> de tous les supports destin\u00e9s aux patients et nous cr\u00e9ons des supports d\u2019essai <strong>multilingues<\/strong>. Nous demandons aux investigateurs de suivre une formation en ligne sur les biais implicites. <strong>Collecte<\/strong> <strong>et<\/strong> <strong>suivi<\/strong> <strong>en temps r\u00e9el<\/strong> <strong>des d\u00e9terminants sociaux de la sant\u00e9<\/strong> chez les participants \u00e0 l\u2019essai.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\/wp-content\/uploads\/2025\/07\/weshare-dei-toolkit.pdf\" target=\"_blank\" rel=\"noopener\">T\u00e9l\u00e9charger \u00ab&nbsp;Support Diversity in Research&nbsp;\u00bb<\/a><br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\" target=\"_blank\" rel=\"noopener\">Acc\u00e9der \u00e0 WeShare<\/a><\/li>\n<li>Permettre un <strong>pr\u00e9-d\u00e9pistage d\u2019\u00e9ligibilit\u00e9 \u00e0 distance<\/strong>, en travaillant avec <strong>KLINEO<\/strong>, une entreprise sp\u00e9cialis\u00e9e dans l\u2019am\u00e9lioration de l\u2019inclusion des patients dans les essais cliniques.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/www.klineo.fr\/\" target=\"_blank\" rel=\"noopener\">Acc\u00e9der \u00e0 Klineo<\/a><\/li>\n<\/ul>\n<\/div>\r\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-dd2a7434 alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-15102695\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2>Mesurer les effets physiques et \u00e9motionnels du traitement<\/h2>\n<p>Pour comprendre pleinement l\u2019impact<strong> physique et psychosocial<\/strong> du traitement, nous collecterons une vari\u00e9t\u00e9 de donn\u00e9es cliniques et de donn\u00e9es rapport\u00e9es par les patients. Nous analyserons les principaux aspects de la qualit\u00e9 de vie chez les patientes atteintes d\u2019un cancer du sein pr\u00e9m\u00e9nopaus\u00e9es, notamment&nbsp;:<\/p>\n<ul class=\"ocean-list\">\n<li>Bien-\u00eatre physique, social, \u00e9motionnel et sexuel.<\/li>\n<li>Sympt\u00f4mes de la m\u00e9nopause, sant\u00e9 osseuse, fertilit\u00e9 et fonction cognitive.<\/li>\n<li>Besoins de communication et processus de d\u00e9cision partag\u00e9e<\/li>\n<li>Retour au travail, observance du traitement et besoins en soins de support.<\/li>\n<\/ul>\n<\/div>\r\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-45e6733f\"><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-da911d7e alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-a9491386\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2>Accompagner les patients pendant<br \/>\nl\u2019hormonoth\u00e9rapie<\/h2>\n<p>Nous \u00e9valuerons \u00e9galement l\u2019efficacit\u00e9 du <strong>compagnon num\u00e9rique RESILIENCE<\/strong>, un outil d\u2019autogestion con\u00e7u pour autonomiser et soutenir les patients pendant l\u2019hormonoth\u00e9rapie en proposant une \u00e9ducation personnalis\u00e9e et des ressources de soins de support afin de r\u00e9pondre aux principaux effets secondaires et pr\u00e9occupations li\u00e9s \u00e0 l\u2019hormonoth\u00e9rapie, et d\u2019am\u00e9liorer la qualit\u00e9 de vie.<\/p>\n<\/div>\r\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-0a80cd48\"><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-3703e03e alignwide uagb-is-root-container\">\n<div class=\"wp-block-uagb-container page-nav-blue uagb-block-b277c911\"><div class=\"plmb plmb-image image-style-none\">\r\n\t\t<figure style=\"width:80px\">\r\n\t\t<div class=\"image-wrapper\" style=\"height:80px\"><img loading=\"lazy\" decoding=\"async\" width=\"1\" height=\"1\" src=\"https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/05\/left-arrow.svg\" class=\"attachment-fhd size-fhd\" alt=\"previous page\" \/><\/div>\t<\/figure>\r\n\t\t<\/div>\r\n\n\n<div class=\"plmb plmb-text mce-content clearfix format-light-margin-title\">\r\n\t<h3 style=\"text-align: left\"><span style=\"font-size: 25px\">Path-for-young<\/span><\/h3>\n<\/div>\r\n<a class=\"spectra-container-link-overlay\" rel=\"noopener\" href=\"https:\/\/path-for-young.unicancer.fr\/fr\/path-for-young\/\"> <\/a><\/div>\n\n\n\n<div class=\"wp-block-uagb-container page-nav-green uagb-block-00ee5efe\"><div class=\"plmb plmb-image image-style-none\">\r\n\t\t<figure style=\"width:80px\">\r\n\t\t<div class=\"image-wrapper\" style=\"height:80px\"><img loading=\"lazy\" decoding=\"async\" width=\"1\" height=\"1\" src=\"https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/05\/right-arrow.svg\" class=\"attachment-fhd size-fhd\" alt=\"next page\" \/><\/div>\t<\/figure>\r\n\t\t<\/div>\r\n\n\n<div class=\"plmb plmb-text mce-content clearfix format-light-margin-title\">\r\n\t<h3 style=\"text-align: right\"><span style=\"font-size: 25px;color: #00b8b5\">Partenaires &amp; Financement<\/span><\/h3>\n<\/div>\r\n<a class=\"spectra-container-link-overlay\" rel=\"noopener\" href=\"https:\/\/path-for-young.unicancer.fr\/fr\/partenaires-financements\/\"> <\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_uag_custom_page_level_css":"","_analytify_skip_tracking":false,"footnotes":""},"class_list":["post-2190","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Engagement patient &amp; representation - Path-for-young<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/path-for-young.unicancer.fr\/fr\/engagement-des-patients-et-representation\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Engagement patient &amp; 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