{"id":783,"date":"2025-05-31T20:23:21","date_gmt":"2025-05-31T18:23:21","guid":{"rendered":"https:\/\/path-for-young.unicancer.fr\/?page_id=783"},"modified":"2025-08-01T16:19:25","modified_gmt":"2025-08-01T14:19:25","slug":"patient-engagement-and-representation","status":"publish","type":"page","link":"https:\/\/path-for-young.unicancer.fr\/es\/patient-engagement-and-representation\/","title":{"rendered":"Patient engagement and representation"},"content":{"rendered":"\n<div class=\"wp-block-uagb-container uagb-block-328bf07b alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\"><div class=\"plmb plmb-text mce-content clearfix format-intro\">\r\n\t<h1>Patient engagement<br \/>\nand representation<\/h1>\n<\/div>\r\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container hidden uagb-block-889e98c0 alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\"><div class=\"plmb plmb-video\">\r\n\t\t<div class=\"video-inner\">\r\n\t\t<div class=\"video-container\">\r\n\t\t\t<a href=\"http:\/\/#\">http:\/\/#<\/a>\t\t<\/div>\r\n\t\t\t\t<div class=\"video-cover\">\r\n\t\t\t<div class=\"cover-content mce-content\">\r\n\t\t\t\t\t\t\t<h2>\r\n\t\t\t\t\tWatch the Adrienne<br \/>\r\nMorgan\u2019s interview\t\t\t\t<\/h2>\r\n\t\t\t\t\t\t\t\t<div class=\"cover-content-subtitle\">\r\n\t\t\t\t\tScientist &amp; Patient Advocate <br \/>\r\nat Independent Cancer Patients' Voice\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<div class=\"cover-bg\" style=\"background-image:url(https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/06\/AdobeStock_169442560-1024x683.jpeg)\"><\/div>\r\n\t\t\t\t\t\t\t<div class=\"cover-overlay\"><\/div>\r\n\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\t\t<\/div>\r\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-5a7f4ece alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-25de2e89\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2><span style=\"color: #05206d\">Bringing Equity<\/span><br \/>\n<span style=\"color: #05206d\">and Co-Creation<\/span><br \/>\n<span style=\"color: #05206d\">to the Heart of the Trial<\/span><\/h2>\n<ul>\n<li><span data-teams=\"true\">This toolkit equips research, clinical, and organizational teams with practical, scalable instruments to advance diversity, equity, and inclusion (DEI). Ready-to-use templates, checklists, and communication guides help pinpoint and remove barriers faced by under-represented populations, ensuring fair access to studies, care, and opportunities. By embedding DEI best practices into day-to-day workflows and long-term strategy, the toolkit fosters environments where everyone feels respected, represented, and empowered. Although first created for the Path-for-young program, its framework is readily adaptable as a model for other projects.<\/span><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<\/div>\r\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-c232a6e6\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-54749498\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h4><span style=\"color: #006160\">Toolkit for Diversity Equity and Inclusion<\/span><\/h4>\n<ul class=\"green-list\">\n<li>Offer guidance for co-design with stakeholder for facilitating co-participation. Optima-young benefits from a high engaged.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\" target=\"_blank\" rel=\"noopener\">Access to WeShare<\/a><\/li>\n<li>Educational guidance to researchers on inclusive participation.<br \/>\nOffer educational guidance to researchers on <strong>inclusive participation<\/strong>. In Optima-young we will follow this guidance particularly we are implementing a pragmatic trial design regarding inclusion\/exclusion criteria. We ensure understandability <strong>and acceptability<\/strong> of all patient-facing materials and we create <strong>Multilanguage<\/strong> trial materials. We ask investigators to complete an online training for implicit bias. <strong>Collection<\/strong> <strong>and<\/strong> <strong>real<\/strong> <strong>time<\/strong> <strong>monitoring of social determinants of health<\/strong> among trial participants.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\/wp-content\/uploads\/2025\/07\/weshare-dei-toolkit.pdf\" target=\"_blank\" rel=\"noopener\">Download Support Diversity in Research<\/a><br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/weshare.unicancer.com\" target=\"_blank\" rel=\"noopener\">Access to WeShare<\/a><\/li>\n<li>Allow for <strong>remote eligibility pre-screening<\/strong>, by workingwing with <strong>KLINEO<\/strong>, a company specializing in improving patient inclusion in clinical trials.<br \/>\n<a class=\"cta mini-green\" href=\"https:\/\/www.klineo.fr\/\" target=\"_blank\" rel=\"noopener\">Access the Klineo<\/a><\/li>\n<\/ul>\n<\/div>\r\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-dd2a7434 alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-15102695\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2>Capturing the Physical and Emotional Effects of Treatment<\/h2>\n<p>To fully understand the<strong> physical and psychosocial<\/strong> impact of treatment, we will collect a variety of clinical and patient-reported data. We will analyze key quality-of-life aspects for premenopausal breast cancer patients, including:<\/p>\n<ul class=\"ocean-list\">\n<li>Physical, social, emotional, and sexual well-being.<\/li>\n<li>Menopausal symptoms, bone health, fertility, and cognitive function.<\/li>\n<li>Communication needs and shared decision making process<\/li>\n<li>Returning to work, treatment adherence, and supportive care needs.<\/li>\n<\/ul>\n<\/div>\r\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-45e6733f\"><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-da911d7e alignfull uagb-is-root-container\"><div class=\"uagb-container-inner-blocks-wrap\">\n<div class=\"wp-block-uagb-container uagb-block-a9491386\"><div class=\"plmb plmb-text mce-content clearfix format-classic\">\r\n\t<h2>Supporting Patients Through<br \/>\nEndocrine Therapy<\/h2>\n<p>We will also evaluate the efficacy of the <strong>RESILIENCE digital companion<\/strong>, a self-management tool designed to empower and support patients during endocrine therapy by offering personalized education and supportive care resources to address key side effects and concerns related to endocrine therapy and improve quality of life.<\/p>\n<\/div>\r\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-0a80cd48\"><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-3703e03e alignwide uagb-is-root-container\">\n<div class=\"wp-block-uagb-container page-nav-blue uagb-block-b277c911\"><div class=\"plmb plmb-image image-style-none\">\r\n\t\t<figure style=\"width:80px\">\r\n\t\t<div class=\"image-wrapper\" style=\"height:80px\"><img loading=\"lazy\" decoding=\"async\" width=\"1\" height=\"1\" src=\"https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/05\/left-arrow.svg\" class=\"attachment-fhd size-fhd\" alt=\"previous page\" \/><\/div>\t<\/figure>\r\n\t\t<\/div>\r\n\n\n<div class=\"plmb plmb-text mce-content clearfix format-light-margin-title\">\r\n\t<h3 style=\"text-align: left\"><span style=\"font-size: 25px\">Path-for-young<\/span><\/h3>\n<\/div>\r\n<a class=\"spectra-container-link-overlay\" rel=\"noopener\" href=\"https:\/\/path-for-young.unicancer.fr\/path-for-young\/\"> <\/a><\/div>\n\n\n\n<div class=\"wp-block-uagb-container page-nav-green uagb-block-00ee5efe\"><div class=\"plmb plmb-image image-style-none\">\r\n\t\t<figure style=\"width:80px\">\r\n\t\t<div class=\"image-wrapper\" style=\"height:80px\"><img loading=\"lazy\" decoding=\"async\" width=\"1\" height=\"1\" src=\"https:\/\/path-for-young.unicancer.fr\/wp-content\/uploads\/2025\/05\/right-arrow.svg\" class=\"attachment-fhd size-fhd\" alt=\"next page\" \/><\/div>\t<\/figure>\r\n\t\t<\/div>\r\n\n\n<div class=\"plmb plmb-text mce-content clearfix format-light-margin-title\">\r\n\t<h3 style=\"text-align: right\"><span style=\"font-size: 25px;color: #00b8b5\">Partners &amp; Funding<\/span><\/h3>\n<\/div>\r\n<a class=\"spectra-container-link-overlay\" rel=\"noopener\" href=\"https:\/\/path-for-young.unicancer.fr\/partners-funding\/\"> <\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_uag_custom_page_level_css":"","_analytify_skip_tracking":false,"footnotes":""},"class_list":["post-783","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - 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